Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World

Alone in My Universe Struggling with an Orphan Disease in an Unsympathetic World Battling a chronic disease can often be a lonely and frustrating ordeal It doesn t have to be Alone in My Universe compiled by Wayne Brown presents a series of writings from patients suffering from

  • Title: Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World
  • Author: Wayne Brown
  • ISBN: 9781450295949
  • Page: 105
  • Format: ebook
  • Battling a chronic disease can often be a lonely and frustrating ordeal It doesn t have to be Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affecBattling a chronic disease can often be a lonely and frustrating ordeal It doesn t have to be Alone in My Universe, compiled by Wayne Brown, presents a series of writings from patients suffering from acromegaly Based on actual personal experiences, these narratives provide a primer of understanding for others dealing with this chronic, debilitating disease that affects many of the body s systems This collaborative effort, written by real people touched by acromegaly, attempts to raise awareness of this low profile disease Each patient tells his or her story as it relates to the disease and its complications Topics include the following Handling pre diagnosis frustration Dealing with fears of medical treatment and surgery Managing family issues and work issues Talking with children Managing negative energy Coping with good and bad days Living life each day With sympathy, empathy, and mutual support, Alone in the Universe shares the heartfelt stories of those suffering from acromegaly to show others that they are not alone in their battle.

    • ↠ Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World || ¿ PDF Download by ↠ Wayne Brown
      105 Wayne Brown
    • thumbnail Title: ↠ Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World || ¿ PDF Download by ↠ Wayne Brown
      Posted by:Wayne Brown
      Published :2019-02-07T18:29:04+00:00

    1 thought on “Alone in My Universe: Struggling with an Orphan Disease in an Unsympathetic World”

    1. This book is a must read for anyone who has Acromegaly! I was diagnosed in November 2016 and I was able to identify with each and every story compiled in this book. At times I felt like I was reading my exact thoughts and feelings. This book covers everything from diagnosis to surgery to after. This disease often makes you feel alone and isolated, but reading these stories from other patients having Acromegaly helped reiterate the fact that I am not alone. I am also part of the Facebook group st [...]

    2. I read this book as research for a novel. It was written by a fellow who has acromegaly. Generally I am a fiction reader but I found the stories in the book amazing and inspirational. This is a book about real people's experiences and it juxtaposes information from medical professionals. I'm probably going to revisit this book in 2013.

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